Sibling and Self Advocate Network (National Fragile X Foundation)
Bringing together those with Fragile X syndrome and their siblings to create lifelong friendships and a greater community of support, while building a better future.
Every month, the SSAN Network has a Zoom meeting with each meeting having a theme or activity associated with it. At our Zoom meeting, we love to dance! You can submit a fun/appropriate song you would like to hear at a meeting!
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Last Updated: 05/03/22
National Fragile X Foundation - New Jersey Chapter
Our mission is to serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved.
NFXF Research Readiness Program (National Fragile X Foundation)
The NFXF Research Readiness Program is a collaborative pipeline to support the development and execution of research in Fragile X-associated disorders. The program provides every researcher in the Fragile X field the opportunity to engage with experts and families to ensure proposed research is scientifically-sound, and patient-centric.