The NFXF Research Readiness Program is a collaborative pipeline to support the development and execution of research in Fragile X-associated disorders. The program provides every researcher in the Fragile X field the opportunity to engage with experts and families to ensure proposed research is scientifically-sound, relevant, and patient-centric. We recommend all researchers engage in the program early for support from concept through the conclusion of the research project.

Our research facilitation mission is to advance scientific understanding and treatment research in Fragile X-associated disorders. This is a big mission and means we need to look at research from many angles. We aim to speed up and increase the probability of getting effective FX and FX-related treatments available to the larger FX community.

Treatments are not just medications, they can be language, speech, behavior, and other interventions that can be just as impactful and can change the quality of life for individuals and families living with Fragile X. Advancing treatment research can also be supporting researchers through our Research Readiness Program or advocating for federal funding for research in Fragile X-associated disorders.

Our research facilitation objective is to be the preferred point of contact and broker for any Fragile X researcher or Fragile X development leader by:

• Centralizing One Stop Shopping
• Aligning Early and Often
• Accessing Critical Research Information for All

Event Type	Advocacy Professional Workshop Family Support Community Conversation Educational Workshop
Age Groups	Adults
Community Services	Community Community Education Education Professional Education / Training Employment / Training Job Training Life Skills Training Preparing for Adulthood Vocational Training Family & Support Services Family Support
Health Services	Medical Health / Wellness / Nutrition

Last Updated: 04/05/22